Zachary’s Krabbe Fight

All of Zachary’s family and friends are joining forces to help raise funds for his fight against Krabbe Leukodystrophy. – Come out and Support

Zachary was diagnosed with late infantile Krabbe disease on August 29th, 2012. Krabbe disease is a rare genetic disorder of the nervous system. It is a type of leukodystrophy. The enzyme galactosylceramide beta-galactosidase (GALC) breaks down several important compounds in the body. In Krabbe disease, there isn’t enough GALC available, and substances which should be broken down start to accumulate. The build-up of these substances damages the nerve cells in the central nervous system, destroying many of them and preventing the repair of others. There are treatment options, but at this time there is no cure.

>On Wednesday October 10, 2012 Zach received a cord blood transplant at Children’s Hospital of Pittsburgh. Zach’s White Blood Cell count has been going up steadily and test results should be back next week to confirm they are transplanted cells. He will remain in the hospital being monitored daily. After about 2 months they will let him go to the Ronald McDonald house (still a sterile environment). He will then be seen 2 times a week by his transplant team. They will go down to 1 time a week then once every 2 weeks and then once a month. Once the frequency drops to once per month, he will be able to come home (to a sterile environment)!

JOIN US April 6th, 2013 7pm –12am, Nolan Hall (OLPH) 31 S Poplar Ave, Maple Shade NJ 08052

$25 per adult/$45 per couple, Includes: Beer, Wine & Buffet, Chinese Auction & 50/50, MoxyPIX Photo Booth (1 picture $5 or 3 pictures for $10)
2 in the bush /Generation Haze & DJ SOLUTION


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